Good morning,
Well, an honest -40 excluding any windchill in Fairview this morning. I'm not sure if we saw that last winter but I am so pumped to get out and to experience that.
Makes me glad that we didn't stay an extra day in Edmonton as I'm not sure I'd want to be travelling on the road this morning.
I'll try to flesh this out later, but in a nutshell here goes.
I was met by Nurse S, a super person and sort of my contact for all things left arm. So they took a bunch of photos of my oh so photogenic arm. Then off to the Kaye Clinic. Everyone showed up for this event it seems, not just the two doctors on my case but three others as well due to its unique nature apparently.
The consensus of the team, my two doctors at the Kaye Clinic as well as some of the doctors at the Tom Baker in Calgary is as follows:
1)amputation is not something that we should be thinking about right now. Apparently it makes no difference in the outcome for the patient. In essence, either you die or get cured. However, having said that they also recognize that my situation is not the normal one they deal with in melanoma cases. Having previously had cancer, lymphedema, this rule may not apply to me.
2)the flush of possible "new" tumors may not be that, we're biopsying one of them which I think clearly is but the rest of the others are thought to be simply points of inflammation, but for sure due to the PEMPRO immunotherapy treatment they have been giving me.
3)The ILI, isolated limb infusion, is not a treatment they want to consider at the moment. Oddly one of the interns had never even heard of it.
4)They decided instead to go with the direct tumor injected (Il2) Interluken 2 as the best option at the moment. So two needles worth to start, wrapped up my arm and off I went.
So what do I make of all of this? I'm sort of pretty upbeat actually. We're going to continue with three more PEMBRO treatments (every three weeks) as well as more Il2 treatments (every two weeks). The thought process is that the IL2 and the PEMBRO have a synergistic relationship and with luck maybe the Il2 will get the PEMBRO to do its thing.
One set back maybe, the PET scan did show the presence of three more tumors around my elbow but they must be deep as we can't seem to feel them.
The drive home was tough, -29 the whole way, some drifting snow and my arm/body was sore. The side effect of the Il2 is fle like symptoms, fever, aches and pains etc. But this morning I'm feeling a lot better and like I said ready to experience the -40 - yippie!!
I never know if I mentioned that I am also a Value Village whore, I love to do the 8 stores in Edmonton - an all day affair actually - and to be honest with you, outside of my undies and socks everything and I mean everything else I wear has come from there. Shoes, pants, anything fleece, jackets, activewear tops and so on. I can't remember the last time I bought new clothes. Sadly like with so many things in my life it has become and obsession and I have 100's of items some of which I have yet to even wear. Washed and put on hangers........... Mom, my gf and son are the same way and dad came on this trip and bought 3 winter coats and some winter boots and was astounded at the prices and quality. Nice to do it on a Tuesday too as I get to use mom's 30% senior discount for Tuesdays!! Even books, dishes, toys and some jewelry too over time. I found a Corvette fleece a few years ago but this trip I picked up a really nice Corvette jacket, even a 2XL to fit around my gut! Just have to bring everything inside and fire up my laundry.....................there was even a 1/24 scale metal C5 at one store, yellow and if you can imagine it I didn't take it.............
Cheers,
Garry